Description
Although rare diseases have captured public attention in recent decades, the lived experiences of people affected by these conditions remain on the periphery of medical anthropological inquiry. Focusing on Poland, Finland, and Sweden, and foregrounding notions of "rare" or "chronic" disease as an embedded category, this book critically analyzes entanglements between people and families with rare diseases and care practices that involve local healthcare policies, practitioners, and treatment modalities. Drawing on locally grounded case studies, Entanglements of Rare Diseases in the Baltic Sea Region constitutes a unique and important contribution to both global medicine and social science scholarship.
About the Author
Malgorzata Rajtar is associate professor and head of the Rare Disease Social Research Center at the Institute of Philosophy and Sociology of the Polish Academy of Sciences.
Katarzyna E. Krol is a PhD student at the Graduate School for Social Research at the Institute of Philosophy and Sociology of the Polish Academy of Sciences.
Book Information
ISBN 9781666942385
Author Malgorzata Rajtar
Format Hardback
Page Count 224
Imprint Lexington Books/Fortress Academic
Publisher Lexington Books
Weight(grams) 490g
Dimensions(mm) 238mm * 157mm * 19mm
