Description
"A searingly honest tale of love, life and death" - Sarah Wootton, Dignity in Dying
Die Smiling is a rare and intimate account of one man's journey to Dignitas in Zurich and his ultimate triumph over suffering and disease.
Told with wit and candour, Julie Casson traces her husband Nigel's extraordinary journey from diagnosis of motor neurone disease to his death.
A successful businessman and father of three, Nigel battles the degenerative disease with boundless courage and gritty good humour, until, faced with the unimaginable torture of a slow, living death - his spirit crushed, his body a tomb - he takes control. He decides to go to Dignitas to end his life, while he is still able to die smiling.
The family prepares for this enormous logistical and emotional challenge: the gruelling Dignitas process and the 800-mile road trip to Switzerland. They complete it with pragmatism and humour. Denying motor neurone disease its victory and choosing his own cure, Nigel dies happily, in the arms of his wife and children.
This is a thought-provoking and deeply moving book, where love, family, dignity and choice conquer adversity. It sits in the heart of the debate on assisted dying and raises questions about the right to put an end to suffering and the right to choose how life should end.
As Britain considers introducing an assisted dying bill, Die Smiling allows supporters of both sides of the debate to go inside a family battling a terminal illness and the difficult journey an individual and close relatives and friends go through at the end of life. It is a frank and loving memoir that explains the reality of MND's cruel symptoms and the experience of going to Dignitas.
Written with the tenderness of With the End in Mind and the joy of Dr Rachel Clarke's Dear Life, this book has stayed in the minds of readers: an intimate portrait of a family loving life and united in death.
Although Die Smiling is a personal memoir and definitely not a campaign book, its publication has been welcomed by Sarah Wootton, CEO of Dignity in Dying, as an important contribution to the debate on assisted dying.
'Julie Casson lays bare the devastating human impact of the UK's ban on assisted dying, capturing precisely why true choice at the end of life is a movement whose time has come for this country. By turns uplifting and heart-wrenching, Die Smiling is a searingly honest tale of love, life and death, and a powerful contribution to a historic debate.' - Sarah Wootton, CEO Dignity in Dying
Contents
1. Looking Back 3
2. Death's Calling Card 6
3. Brenda and Methuselah 15
4. Tests, Tests and More Tests 23
5. The End of 'Normal.' 32
6. Life with MND Begins 44
7. Breaking the News 53
8. The Wailing Weeks 67
9. Spain 81
10. The Bucket List 85
11. Where Hope Dies 91
12. Not Ready for This 98
13. Our Spanish Love Affair 103
14. Two Steps Ahead 112
15. MND Declares War 122
16. Don't Forget Me 126
17. Cost More Than our First House 132
18. Starting to Die 137
19. 22 July 2011 147
20. Every Day is a Bonus 157
21. Don't Laugh at my Cock 164
22. Toileting Matters 179
23. When the Laughter Stops 191
24. It's All About Control 203
25. Apply to Die 210
26. The Provisional Green Light 226
27. Last Christmas 238
28. The Recce 247
29. Appointment with Death 264
30. Twenty-five Days Left to Live 283
31. The Goodbyes 295
32. The Hotel and the Doctor 303
33. One More Day 314
34. Nigel's Cure 328
35. Nigel's Last Goodbye 345
Acknowledgements 356
About the Author
Julie Casson is a debut author. She is a mum, grandma and great-grandma and lives in Scarborough, North Yorkshire with her beloved miniature schnauzer Bodger.
Julie spent twenty-three years working in Further Education. Starting out as a teacher, her career evolved into management. She holds an MA in management from the University of York.
Her career ended unexpectedly in 2007, when her husband, Nigel, was diagnosed with motor neurone disease. Julie became Nigel's primary carer. Nigel's positivity, humour and pragmatism throughout his illness, and his determination to take control of his death, are the inspiration for this memoir.
In 2011, she started a blog, posting light-hearted commentary on everyday existence and specific accounts of Nigel's experience, which she later developed into this book. She completed a creative writing course at the University of York.
Julie is a supporter of the Motor Neurone Disease Association and member of Dignity in Dying. Her greatest wish is that Nigel's story contributes to changing the law on assisted dying in the UK.
Reviews
'Julie Casson lays bare the devastating human impact of the UK's ban on assisted dying, capturing precisely why true choice at the end of life is a movement whose time has come for this country. By turns uplifting and heart-wrenching, Die Smiling is a searingly honest tale of love, life and death, and a powerful contribution to a historic debate.' - Sarah Wootton, CEO Dignity in Dying
Book Information
ISBN 9781914487262
Author Julie Casson
Format Paperback
Page Count 366
Imprint Haythorp Books
Publisher Canbury Press
